My husband, Edward, and I had returned from a Hawaiian cruise in April, 2018. During the cruise, I felt lethargic – I had no energy. I slept a lot, and drank gallons of water every day, trying to quench an interminable thirst. I knew I was anemic. My doctor had been trying to figure out why. To make a long story short, at the end of May, 2018 I was so fatigued I couldn’t stand up long enough to have a shower. Ed drove me to the ER, and what we heard there changed our lives forever.

In this blog I hope to share my diagnosis, my experiences, and highlight some of the curve balls that life has thrown our way.